Find Your People

Here are some of the medical centers and multidisciplinary teams with experience and knowledge of SMARCB1 cancers. They can provide second opinions, advice and guidance. Wherever you are in the world, you can reach out to them.

Certain SMARCB1 cancers have dedicated associations, foundations, and patient support groups which can also provide information, resources, and support.

We are always looking to enlarge our community, so please get in touch!

Associations & Support Groups

Malignant Rhabdoid Tumors & AT/RT


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Epithelioid Sarcoma

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SMARCB1-deficient Sinonasal Carcinoma (SD/SC)  

Spotlight on SD/SC

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Renal Medullary Carcinoma (RMC) 

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Undifferentiated Chordoma

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Myoepithelial Carcinoma of Soft Tissue

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Chondrosarcoma

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Schwannomatosis  

Surviving Schwannomatosis Support Group

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Visit Facebook Group

SMARCA4 Cancers 

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