Find Your People
Here are some of the medical centers and multidisciplinary teams with experience and knowledge of SMARCB1 cancers. They can provide second opinions, advice and guidance. Wherever you are in the world, you can reach out to them.
Certain SMARCB1 cancers have dedicated associations, foundations, and patient support groups which can also provide information, resources, and support.
We are always looking to enlarge our community, so please get in touch!
Associations & Support Groups
Malignant Rhabdoid Tumors & AT/RT
Name of the place or Expert
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Name of the place or Expert
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Name of the place or Expert
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Epithelioid Sarcoma
Name of the place or Expert
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Name of the place or Expert
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SMARCB1-deficient Sinonasal Carcinoma (SD/SC)
Spotlight on SD/SC
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Renal Medullary Carcinoma (RMC)
Name of the place or Expert
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Name of the place or Expert
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Undifferentiated Chordoma
Name of the place or Expert
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Myoepithelial Carcinoma of Soft Tissue
Name of the place or Expert
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Chondrosarcoma
Name of the place or Expert
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Schwannomatosis
Surviving Schwannomatosis Support Group
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Visit Facebook Group
SMARCA4 Cancers
Name of the place or Expert
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